Community

Patients Club

A support and community initiative for patients living with chronic respiratory conditions.

Funder / Sponsor To be identified
Period 2026 — present
Patients Club

Description

The project includes:

  • medical literacy and diagnostic sessions for idiopathic pulmonary fibrosis;
  • presentation of factors influencing the evolution of the disease;
  • antifibrotic treatment and oxygen therapy (including practical demonstration);
  • psychology and physiotherapy workshops;
  • moderated discussions with stable patients;
  • materials for participants (mini-guides, checklists, symptom diary);
  • goodie bag with practical and motivational resources;
  • pre/post event questionnaire to quantify the educational impact and the level of confidence of the participants.

Partners

  • Institutul Marius Nasta, București

Support this project

Your contribution helps advance this initiative.

Support us

More projects

Patients Club Community

Patients Club

A support and community initiative for patients living with chronic respiratory conditions…

Learn more →
PneumoDialog Education

PneumoDialog

The Marius Nasta Podcast — a series of educational films on respiratory diseases, produced…

Learn more →
Romania TB Portal Research

Romania TB Portal

International open-access TB data platform — part of the NIAID TB Portals programme, with …

Learn more →